Zoom style micro difficult team meeting due to invisible air intruders that can not think but can kill those that do. After over an hour of testing, I was told to prepare for part 2. This for the ethic within to be sure that what was certain is secure according to statistics in a manual of the 5th kind. Spoiler alert at the end of the second test, first day… “do not stop going to ASD group online.” Ahhh! Ok. That is to say that though the testing needs yet another day, that I am already eligible for the label that I already had. To wit, I am Autistic again. Well, not really but due to the DSM 5 spectrum theory which practically eliminated…uh um, integrated the Aspie category into the same spectrum with Autism and PDD which definitely fit me. Both the Aspie and PDD. A long story that is due to my blue genes. Well, maybe not blue but I am genetically modified to think how I look. Different. Day 2 will be to see what specifiers will be issued and for follow up to redesign the treatment plan for future face to face fun. That is to say counseling on how to be abnormally acceptable to society. Supposedly I am anti-social though not asocial which means not much for society. The “anti” social in my case is that I see society but disagree that it’s norms are for me. So, maybe I am slightly, somewhat, a little bit different. Be that as it may, I still say that laws are like lines that encourage people to color within. I just wonder who designed the lines in the first place. Perhaps the crayons were better designed to color outside the circles and shapes. Perhaps lines were drawn as lazy guides, given by some invisible system, controlled by alien life forms to force everyone to be just like them, whoever they may be. Who says that run on sentences are wrong? Just because of commas, or perhaps just tooo long to keep a thought collected. Why should there be three words for two, too, and to? Why do two of the three have three letters. I like 4 in three as written above. Yes, I am off my meds! Yes, just slightly different. Thanks for asking. The task is to manage without management. This is not advice. I am convinced that I must reconvene the medication management experience expeditiously. I am convinced that each pill has a string. Each string is a line. The lines are what I am supposed to stay in. I am wondering, who drew the lines in the first place? Definitely not the first to ask. However, I won’t know. I must go. I wanted to be clear minded for the test. Then I received a kiss from a manic mindset. Second test part 2 by the professionals is less than a week. I must retreat until then. Until then I have ASD without any lines or specific specifiers. Until then I won’t go outside, not until the inside lines up with the lines on the street. The lines that someone unknown drew who passed the test of day 2 with out any specifiers.
Off to a mountain type rocky start to the finish of a play. Playing with vibrations that transport swifter than an all terrain vehicle. Getting back to normal is a fallacy for the insecurities of fall leaves that ride the winds. They never see the tree again from the same view, only a few may stay awake long enough to notice anyways. Why are such unmoving, but living to give by the sea type trees so bountiful? They seem to play every time a breeze visits. So stable. So able to just be. Alive and unmotivated to move beyond what the roots authorize. No surprise that they last past the blast of the winds. This tree that my little i does see has been around to see more than me. Perchance, just a glance and he has seen those who made me and escorted me into the scene to breathe. Same chance that once only this type survives, a time when this very tree will see those who read from me. Those from eternity that earth is yet to see. The deer pants and does a dance for the fall of minds. Hunted like a prey. Sought after like for play. Life and death in the tip of the arrow. Buckets of bullets pierced the winds, vibrating the leaves as the tree shook with pain, while the watcher took aim. Cheers! Another death. Someone earned a trophy for the wall case. More leaves fell. The water grew silent in view of the violent vibration of blood on the ground seeping towards the roots of the trees. Tonight we eat. Tonight we sleep. We sleep with the leaves that fell last fall. We eat with the deer that fell last night. We dream of the trees that witnessed the blood. Let me be like a tree. Let me be like a deer. Let my mind rest from the vibrant run of the vehicle that crosses all terrains.
Had my psychology appointment last week. Just when I thought it was safe to get back into the writing…a wrench was tossed. A new study was launched. New doors were opened. New answers to old problems and just maybe a few more initials to add to the seemingly ever growing list of issues. Most recent Autism Spectrum Disorder.
I was always on a pursuit to see if all the underlying issues were somehow magically connected. No sooner did I give that up and blog about acceptance of the Bipolar did this arise. Was she just waiting in disguise for my surprise acceptance to issue the next challenge? Perhaps! So I was tasked to research, as she knows I will anyway, to make the connect. Here are some recent but astonishing findings.
I have historically been diagnosed with Marfans Syndrome, which is a connective tissue disease. I also deal constantly with IBS and acid reflux. I also have severe anxiety issues that present all across the anxiety spectrum from somatic issues to panic attacks and everything in between. Still not enough, add Bipolar 1 and PTSD from a host of abnormal life twists and events. So what is the connection? Maybe Autism.
I know, right? But…how could this have been missed? Isn’t autistic behavior seen at a young age? In fact, I am quite certain that you have to be diagnosed before age 2 or 3 for most, not 50!
Come to find out, with still so much research to do, that “syndromic” Autism can be found much later in life. With 50% of the cases being what I will call “classic” Autism, that is to say, Autism as I read it in the DSM 5, there is another 10% with genetic factors. These genetic factors or the syndromic Autism is my new field of study. Obviously not much out there, and seemingly even less consensus. Much like the C-PTSD, which is not in the DSM but still readily spoken about by professionals on blogs and posts.
Now what? If it is true, I have a long awaited answer that connects ALL of the small mysterious dots. If not, I continue to explore and just be abnormal with one less label.
Interesting fact, at least to me, is that so much of my research kept ending up on Autism Spectrum sites. I study Anxiety and end up there. I study IBS and end up there. The kicker was searching for more info on Marfans syndrome and yet again end up there. Thanks to an article, that I need to find again, which showed the results of a study for Ehlers-Danlos syndrome and it’s connection with autistic symptomatology. Ehlers-Danlos is a connective tissue disorder similar but different than to Marfans syndrome. Similar in the connective tissue disease but different in presentation. All of that said, I have a few questions.
1) Is the genetic presentation of autistic symptoms still considered to be on the Autism spectrum or as a symptom pattern of the underlying genetic disease?
2) Is high functioning Autism a reality or just spoken of like C-PTSD?
3) What is the treatment plan for such a mixture of madness?
4) Is social awkwardness and language deficiency a must or merely part of a whole that may or may not be present?
5) Is it better to ask five questions when four was sufficient?
Stillness spoke so sweetly that even serenity had to blush as she graced by. Yet, Illness was extremely intolerable to the softly sung lullaby that was brooding on the silver air waves. Illness decided that this noise was such a nuisance that he would toss the very alarmed clock out of the window. The neighbors heard the crashing of the glass as it broke into hundreds of small weapons of war. They turned over and went back to sleep. Illness maintained the resolve to solve the riddle of the universe which only those with such thoughts even know exist. The new breeze was breaking into the open window, without a sound, and was touching down upon the face of Illness. This is a trick to make me sick said Illness and he took a thought to find some paper and tape. Better hurry before the flashing of lights, the flashing that lights the night arrive for a ride. Unwittingly this time, the crime would go unnoticed as the neighborhood grew increasingly immune to the immensity of his sickness. Then, the glass that once stood as guard of the wind broke the skin against the wrist. This pain, this bliss, this blood. This time, this need, this help must speedily be on its way. Just sit and wait. The lights must be flashing soon. They heard the weapons of glass consume my imagination. They that live nearby, sometimes say Hi, must be drawing nigh. The silence. Stillness now such a great delight but the fight to keep awake. The flight, of the lights, of the night, have not come. Stillness still sings this lullaby. Same song but new tune. Same cut but new wound. This time it’s not a cry for help. This time I cry for help. Illness began to sing a song. Overweight with sorrow, this is already tomorrow, no ones heart to borrow. The breeze becomes slightly more violent. The wind speaks in a mocking movement as the papers are being rearranged on the desk. The intruder vanished so suddenly and so gracefully that even serenity would blush as she returned home. Would serenity use her phone? Illness remains in the zone. Stillness came much closer to home. Too late to practice this tune. Too late to speak to the moon. Illness had the answer to the universe. Stillness now sings it to the multiverse. It’s getting still, it’s getting dark. The neighborhood goes to still the wind. Serenity sleeps with stillness again. Lights are flashing…
There is a place where the dream seems so real, it’s surreal to think that this dream means mania. Not now, but before. Before there was a door to a lake. On the surface, the water faced my direction. In the water, the waves wrote an invisible invitation to walk over and jump in. They promised support. I am sport enough, though, it is tough to think back to the fact that water can not carry the stones that were tossed. But the bobber of the fisherman remains afloat, as does my boat. With a stroke of the pen I signed my name in the air without ink. I guess that means that I didn’t think about the sinking when walking on water was the dream linking the mania, while drinking depression away on the waves. The run on sentence simply foreshadows the reality. Water that holds me in a boat can’t hold me. The drinking was not strong drink, but the loss of thoughts that were already falling to the very place I would be instantly, as the step of security left me looking up to support. The boat floats. The water lied. Weighted down I guess by the manic jacket, the panic attacked me at the bottom of the lake. This quick decent was unique as the boat seemed to lift away from me. The water seemed to speak again stealing my attention from that which was my previous support. This time asking me to breathe like the fish that I see in the sea. For the life of me, I signed my name again, this time with wet ink and no pen. Common knowledge kicks in. The very water needed for life and support let me down in an instant, and offered a watery grave, of which I could write my own name in the sand. How grand to pen my own end. I can’t control the boat as it floats away. I can’t control what the water will say. I can’t control how I feel today. I can control the pen. I can write my name again. This is manic making me pray for relief. This is panic after support gives way for me. In the boat again. Not sure how. Willing to float again. Not sure why. The door has closed on the lake. I wonder by who. Mania for the fisherman. Mania is a dream come true. Please wake me up. I sign my name.
Uncertainty is for certain. What never changes is that things change. Same questions asked of me, again, this time with a new voice. Suppose the last notes were untrustworthy. Suppose the last notes were private. This Doctor needs to hear for herself rather than trust the several before her who asked the same exact, the same exact questions. Not very optimistic that this was the last initial interview. Want to review soon, you know, just in case things are seen differently, this time around. Like, am I still OCD? Or Manically depressed or just obsessed with not knowing the proper diagnosis, that seemingly changes as much as a mood of a bipolar friend. Wait, I have no friends, that was an allusion to the illusion that people actually care for more than themselves. Next month, another call to see if the formal medication, formerly prescribed, now described to me again, as a solution. This time the bottles will have the same name, new dose, with a new name. Wait, does it matter who prescribed the medication initially? Were they wrong? Must accept the diagnosis is the mantra of more than a few. What is it this time? The trail of prescribed labels tells a fable of trouble in the past. They also gather in the morning and speak of stable days that pass away without much thought. I can not remember when last night ended, but the bottle is open. I tried to sleep, so I think. The bottle is open. So I tried to stop thinking, or so I think. Better to think in weeks and not days. Better to eat something, anything. When was the last glass of water? Must have been last week. The week I found the open pill bottle. It was a week ago, just like it was yesterday. I slept last week, just like it was last night. I have an appointment tomorrow. I hope to arrive sometime next week.
Heard a novel thought about how we think. The wave of the future is now waving goodbye to traditions. A sigh of relief for breath therapy. I was also enlightened on infrared light treatment. Of course there are so many courses online to choose from. I almost hired a lawyer to decipher all of these laws of physics and quantum mechanics.
Then it finally clicked. Superb thanks to all who study superposition. It seems like it will take super powers initially but the science lines up and technology testifies to its veracity. I will soon know either way. Hope to keep up with the updates along this journey. Until then, I will be riding the waves of possibility, collapsing the past into dead seas of forgotten waters. Forgetting everything that is behind, while wading into choices which create new history. A mystery only until observed. Let’s see.
Light fades every evening. Scholars say the sun sets in the west and yet, everyone knows that it doesn’t. Why do we accept this curious lie as if…as if it’s ok to say what we always say even though it’s untrue.
Yes, I am fine today thanks for asking! I am light fading over mountains and disappearing over streams. I reel in my rays at days end. I feel in ways that plays against logical sequence. I stand still but turn on axis I. Or maybe II. From manic day breaks to personality nightmares.
Yes, I am fine today. Thanks for asking. Just as I sit and wait for the flaming gas fire to set against all understanding. As if…as if I knew the soul of the sun. It runs upon itself until itself is no more. I guess the sun will set after all. Then I will answer differently. No! nothing is ok. Thanks for asking. I just was unaware as I was entranced by the sun that rose as red rays against common sense and I was completely unaware of myself.
So we wait, I and the sun, as we face the final setting. The day that breaks never again. The night that will never end. I am fully aware that I will never see the sun face to face. But I know that I don’t know how I feel today. I know that the sun never rises or sets but I just don’t have any feelings about it. That’s the truth that the lie can’t accept. That’s the logic that is illogical. We must just accept delusion as if… as if I was the sun running on myself until…until I set. Yes, I am fine, thanks for asking.
SSI should adopt a better model for communication. To send out threatening letters to unsuspecting and disabled people can not be the best way to get in touch. Who wants to open a letter, after doing nothing wrong, only to find that the funds may be cut if…Why not just send a friendly letter that explains things first? For example…
“Salutations valued recipient, we are writing to update our files and would enjoy speaking with you on …at … in the afternoon. Thanks for making time to help us help you. The information we will cover is as follows…The call will take less than 15 minutes and is necessary for us to ensure some details. This is a routine update and everyone will have an appointment at some time.”
Obviously I was being moderately sarcastic but the point remains, just ask! Threats are unnecessary and puts people on defense before the offense even happens. Perhaps their blanket threat letter can be used for those who missed calls or appointments as a last ditch effort. Knowing the blogs that I have read, no one wants to be threatened every time info is needed. Positive reinforcement still works. Many people on disability have anxiety disorders and those letters can cause a worsening of symptoms. Those fighting depression can fall deeper in that abyss of darkness at the smallest thing. Something like all of your income will be cut if….
Not professional at all SSI. We expect better. As a bit of advice, perhaps hire people persons for jobs that deal with people. Perhaps train people that they are talking to people who may be hanging onto life, so yelling and arguing about numbers, and demanding clear and concise thinking on call, is just not always possible. If it was, we would not be considered disabled. SSI remember the mission, of you have one. If not, I suggest something about helping people rather than saving pennies! Create another letter that doesn’t threaten people. Just ask, that’s what I am doing now. Just asking.
From organizing everything from closet space to little cars that race, I made haste to even things out. Symmetry is the key phrase that unlocked the door to why if I got hit on one side I would turn the other cheek. Not as a humble man, but to be hit again or feel pain of breaking the evenness. Not a fun thing when the older brother realizes the secret of symmetry and constantly uses it against me. A hit and run. A hit just for fun to see if I would hit myself to even out the pain. I did. I was a kid.
Two score years later I still sense the symmetrical tug. In order to keep things together but equally apart. It started with a look in the reflection which showed dissatisfaction at the lack of symmetry so obvious to me, and pointed out constantly. Even thinking occupies so much space, often it’s hard to focus on the things at hand. Like my hands have different lines to the point I was going to cut one to even the sight. When will “Even” retire for the evening? I read a solution is to tap one side and suffer through the uneasiness of unevenness. I am starting a petition to have their license revoked.