To drink or not to drink, often I don’t think of water. Another multi-doctor session via air ways to protect our air passages from passing infections. Lesson learned that once again adults on the spectrum often are undiagnosed due to lack of testing. The grapevine shakes with juicy news of new tests in the field that are being grown. Here’s my acceptance letter to assist from afar, offering the proper inquiry necessary to prevent accidental misses of adults who articulate early.
First, I don’t feel thirst. This anomaly indicates perhaps pituitary dysfunction which shakes hands with this thyroid who needs a steroid to balance. Not actually a steroid but to keep the integrity of the scheme that places words in one act plays. Syndromic Autism or as it is on my file, ASD with a specific specifier having a genetic cause.
Next stage is to zone in on this torrential waterfall a take a sip. It’s all about the perspective. The daunting dance of the psyche has finally concluded. Now we can begin again with a direction that the entire team is satisfied with. Now for the neurologist or genetic specialist to assist in naming the physical claim that has caused damage to this brain. However, not for some time as the wear of this strain is still draining like a snow cap in the summer. So, adults with Autism I salute you. Especially those who didn’t know until you were adults. All sides of the spectrum I wish you the best. I guess this is where I drink from the sink with a tank to think of all those struggling with something unnamed. As with mental disorders this genetic malfunction has been named, claimed, and then rejected all the same. To wit, out of 5 doctors (none specialists) 3 proclaimed Marfans syndrome while 2 others nodded in another way. So strange that genetics can spring forth with so much ambiguity. The good news is, that knowing this perfect label for the genetic syndrome pales in comparison to just knowing why I don’t fit. Sure, I wish to know. Soon I will obsess to find out. However, the ultimate question has been quenched. The water of the unknown psychological issue has been agreed upon and formally written in the file. Self advocacy was definitely necessary. So I feel for those with perhaps less energy or ability to shine lights where darkness looms. For those who wish to speak up but not know what to say. Not to mention, the other co-morbid issues have not gone away. Especially this OCD which is 17 times more likely in the likes of me. 75% of the spectrum moves with a mood disorder which may trump all other diagnosis in terms of order. Hence the reason so many can mask so long without detection. Anxiety…well…sure. IBD most likely due to the conflict of constant tension in the living situation called this body. Fortunately, I don’t still have the temper tantrums that I used to display when play didn’t go my way.
Next phase is the sensory processing issues. That deserves an entire post as the senseless senses played immature games with my consciousness constantly. Just a touch of sugar in my drink and I sink. Just a single degree change of temp and I fall limp from the heat. Now he is sweating but I need a cover. Now the shower is too hot so why bother. The sounds, the sounds just keep sounding the alarm harming the already radiating headache. That was just this morning. The good news is, I know why and that really makes a big difference. Due to the years of research and doctors visits, I may have been the first person ever to hear… “congratulations, you have Autism” and fight back tears of joy. I realize now what I wish I knew then, it’s all about perspective. Time now for me to take a drink from the falls, not because I feel thirsty, but because I can.